The Washington State Fathers Network (WSFN) provides information, support, and resources for fathers of children with special needs. Their focus is on assisting fathers as they become more competent and compassionate caregivers for their children. In addition to connecting men with other dads, WSFN provides opportunities for “all family” gatherings and celebrations.  This year their annual conference will take place on October 8^th at Tyee Middle School in Bellevue. The conference will include a keynote talk from Dr. Joel Domingo, a former UW LEND Fellow, and several breakout sessions on topics such as parenting skills and understanding insurance benefits. To learn more about conference and register, check out the flyer in English or Spanish!

This week, our Screen-Refer-Treat (SRT) research team traveled to Spokane to kick off a series of partnership meetings with participating primary care and early intervention providers. These meetings included updates and discussions about data collection, family recruitment, and upcoming training workshops. Over the next few weeks, we look forward to continuing these meetings in Spokane, Yakima, Skagit, and Lewis counties and connecting with all of the providers who play such a vital role in this project! In the photo below, Community Liaison Dana Stevens and Research Assistant Allycen Kurup proudly display our recruitment flyer turned poster that will grace the walls of the PCP practices and EI agencies!

Today was Dr. Paul Yoder’s first day as a Visiting Professor at UW, where he will be spending a 4-month sabbatical. Paul is an accomplished methodologist and intervention researcher, a Professor of Special Education at Vanderbilt, and a longtime colleague and collaborator with READi Lab director Wendy Stone. He is PI on the ImPACT intervention grant, which is currently underway at both Vanderbilt and UW. For this grant we are recruiting families who have a child with ASD and a younger infant between 12 and 18 months old. Families are randomized to either the intervention condition or the assess-and-monitor condition, with the goals of understanding: (1) the usefulness of ImPACT for promoting social-communication development in infants at elevated risk for ASD, (2) the infants and families for whom this intervention is most effective, and (3) the mechanisms underlying this intervention’s effects on infant’s social and language development. We are excited that Paul will be spending some time with us as we implement this project!

An article published recently in Spectrum News discusses whether learning more than one language is beneficial for children with ASD.  Given that children with ASD often have difficulties with language learning, multilingual families in the U.S. are usually advised to speak to their child only in English. However, a few studies indicate that children with ASD: (1) can learn two languages as well as they learn one; and (2) may become more socially isolated if their family speaks to them in a non-native language (e.g., English) in which they are not fully proficient. Because there is now considerable evidence that multilingualism is associated with cognitive benefits in typically developing children, additional studies are needed to empirically examine the potential benefits of multilingualism for children with ASD and other developmental disorders. To read the article in its entirety, click here.

The Seattle Storm is partnering with Autism Speaks for an Autism Awareness Day on September 18, when they face the Chicago Sky. As part of this special event, The Storm is offering discounted tickets and a portion of the proceeds with be donated to Autism Speaks. To purchase your tickets and cheer on the home team, click here! You may see a pop-up with this message: “This item currently does not have available tickets for purchase but may have additional availability based on a promo offer.” If so, select the “continue” option and enter the offer code AUTISM.

This week the READi Lab hosted Dr. ChuSui Lin, professor of special education at Chung-Yuan Christian University. Dr. Lin conducts intervention research with young children with ASD, and is visiting our lab to learn about our various research projects.  In the photo above, READi Lab coordinator Katie Ragsdale is helping Dr. Lin access the online STAT training tutorial for her future work in Taiwan.

The Arc of King County is sponsoring a Wings for Autism^® event that will take place on Saturday, October 15^th. This event provides children with ASD and their parents opportunities to experience every aspect of navigating an airport, from getting a boarding pass, to going through the security line, to boarding an airplane. In addition to providing practice for children, it offers a great opportunity for airport personnel to learn about ASD so that they can make the travel experience more comfortable for children and their families. Registration for this event will open up on Thursday, July 21^st, at 8:30 am, and slots get filled up very quickly! To learn more, and access the registration link on Thursday, click here!

In a recent article in The Mighty, a mother shares her experiences raising two daughters with ASD who have remarkably different social profiles. In her story, Jessica Offer discusses some of the misconceptions surrounding sociability and ASD, highlights how individuals with ASD have unique personalities with varying levels of introversion/extraversion, and provides some helpful suggestions for working on key aspects of socialization with children with ASD. To read the article in its entirety, click here!

 

We have updated our Autism Resources webpage to include more local, state, national, and online resources for families who have children with ASD. Click here to view the new page, and please let us know if you have any additional recommendations or suggestions!

 

 

The Simons Foundation Powering Autism Research for Knowledge (SPARK) is hosting a free online webinar this Thursday (July 7^th) from 1:00pm to 2:30pm EST, which will discuss why challenging behaviors occur in children with autism and ways for parents and teachers to prevent them. The webinar will include a 15-minute Q & A session at the end. Click here to register. You may also submit questions before or during the seminar to Alexandra Stephens, webinar host, at astephens@simonsfoundation.org.

The READi Lab has teamed up with physicians at the Sea Mar Community Health Center in Seattle to offer a two-part, office-based workshop series on early identification of ASD. These workshops covered topics including the early behavioral features of ASD, the use of the M-CHAT-R/F screen at 18-month well-child visits, how to talk to parents about concerns (and respond when they present concerns), and provided up-to-date information about referral processes and local resources. These workshops were the first of their kind for us and we are excited about conducting similar workshops next year as part of our Screen-Refer-Treat Study.  We thank our wonderful hosts at Sea Mar, as well as the UW Institute for Translational Health Services (ITHS), who provided funding for this project.

Pictured in this photo (taken after yesterday’s workshop):  Drs. Kyle Steinman, Lisa Ibañez, and Wendy Stone from UW, and Drs. Cor Van Niel and Ricardo Jimenez from Sea Mar.

Next month SundanceTV will be premiering “The A Word,” a one-hour British drama series that chronicles a family’s experience raising a child with ASD. The series’ first of six episodes will air on July 13^th at 10 pm ET. To learn more about the series, click here . Let us know what you think about the show – we haven’t seen any previews this time!

 

This week, we are happy to welcome Roya Baharloo to our team as a research study assistant! She graduated recently from UW with a B.A. in Psychology and a minor in Spanish. Roya will be working on our community-based Screen-Refer-Treat study, and will also conduct behavioral assessments for the ImPACT study. Before joining the READi Lab, Roya worked as a research assistant in Jessica Sommerville’s lab, where she studied early social cognitive development. She is excited about continuing to work with young children as well as learning more about the complexities of ASD.

To read Roya’s bio and learn more about the entire READi Lab team, visit our About Us section.

The Interagency Autism Coordinating Committee (IACC) is seeking input from individuals with ASD, family members, community providers, advocates, and researchers to inform the development of its strategic plan for 2016. The IACC is a federal advisory committee that coordinates all efforts within the Department of Health and Human Services related to ASD, and helps ensure that a wide range of ideas and perspectives are represented in a public forum. Public comments are being accepted now through July 29, 2016. Now is the time to provide your input and feedback on the seven key topic areas at the center of the strategic plan: diagnosis and screening, underlying biology, risk factors, treatments, services, lifespan issues, and other infrastructure and surveillance needs.  Click here submit your comments!

READi Lab Director Wendy Stone is on the East Coast this week presenting on the lab’s community-based research. The first stop is at the University of North Carolina TEACCH Program, where she is speaking about lessons learned during our work in community settings. The next stop will be at the National Institutes of Health (NIH) in Bethesda, MD to present on the progress of the Screen-Refer-Treat Study. These trips are not ALL work  related – she is also getting to see old friends from her time as a TEACCH intern and catch up with two former Vanderbilt graduate students, Drs. Lauren Turner-Brown (left) and Elaine Coonrod (right). She will also overlap briefly at the DC airport with her son, Zach, who is attending a different NIH meeting this week!

The public lecture co-presented by READi Lab Director Dr. Wendy Stone and Dr. David Mandell (from University of Pennsylvania) on the topic of Autism Intervention in the Community is now available for your viewing pleasure! The lecture, which was part of the 2016 Allen L. Edwards Lecture Series, highlights the challenges and opportunities related to translating research findings to community practice.

Dr. Wendy Stone- Transforming Healthcare Systems to Increase Early Access to Autism-Specialized Services

Dr. David Mandell- Why Autism Interventions Fail in Schools and What To Do About It

A few weeks ago, we asked for your suggestions about how doctors should talk to parents about ASD concerns– and you delivered!  Your responses enabled us to develop two Tip Sheets for Primary Care Providers (PCPs). These tip sheets provide helpful and unhelpful ways to discuss ASD concerns when either parents or PCPs are the first to express them. We will be sharing these documents with PCPs at our upcoming training workshops and you can download them here (PCPs Express Concerns, Parents Express Concerns)!

 

 

While Wendy has been globetrotting to conduct STAT training workshops in Poland and Taiwan, today Lisa led a local STAT workshop at UW for community providers affiliated with the UW LEND program, Providence Regional Medical Center (Everett), and Northwest Center. Although we missed the opportunity to bask in today’s sunshine, we engaged in lively discussions about the early signs of autism and the screening process!