A new study from the READi Lab was published this week in the journal, Autism Research! Led by graduate student Trent DesChamps, the study examined levels of parenting-related stress among parents of young children who expressed ASD concerns but had not received a formal evaluation. Trent and the team found that parents of children with ASD concerns experience higher amounts of parenting stress on average compared to parents of children with other types of developmental concerns and parents of children with no developmental concerns. These findings suggest that families of children with ASD concerns experience unique stressors, even compared to parents with other types of developmental concerns, and highlight the need to better support them and their children during the period of time prior to the diagnostic evaluation. To check out the article, click here!

 

Dr. Stone was asked to comment on a new study published in the journal ‘Pediatrics’ that reported a high rate of ‘false positive’ screening results on the M-CHAT/F. In her comments, which appeared in ‘Healthline,’ she describes the importance of conducting universal ASD screening, and of conceptualizing screening as one part of a process that also incorporates behavioral observations, concerns of parents and primary care providers, and shared decision-making regarding next steps. To read the full article, click here!

The READi Lab would like to extend a big welcome to our two new graduate students in the Child Clinical Psychology program at UW, Shana Attar (left) and Hannah Neiderman (right)!

Shana received her undergraduate degree from the University of Connecticut and her master’s degree from Harvard University. She became interested in ASD research while working as a phenotyper in an Autism lab at Boston Children’s Hospital. After this, she further cultivated her interest in ASD through involvement in other research studies, including an early detection study at Total Child Health in Baltimore and more recently, an early intervention study at Drexel University in Philadelphia with Dr. Diana Robins and Dr. Giacomo Vivanti. Shana is interested in researching strategies that improve early detection rates and early intervention utilization in community settings.

Hannah completed her undergraduate degree at UCLA, where she was involved in various research labs and clinical fieldwork focused on developmental psychopathology, which sparked her interest in ASD. Since then, she has further explored her interest in ASD as a research fellow at the Yale Child Study Center under Dr. Katarzyna Chawarska, where she worked on multiple studies including the Autism Center of Excellence grant focused on early indicators of ASD as well as a multimedia ASD screener study within the community. Hannah’s research interests include early intervention for children with ASD and accessibility to diagnostic and intervention services for families in the community.

Yesterday the U.S. Senate unanimously passed the Autism CARES (Collaboration, Accountability, Research, Education and Support) Act, which provides federal funding for autism research, services, training, and monitoring. The bill, which authorizes almost $2 billion in funding over the next 5 years, will now go to the President for his signature. The Autism CARES Act of 2019 will continue to fund programs such as LEND and AIR-P, and has an additional focus on supporting individuals with ASD at all ages and addressing disparities in access to quality care. To learn more, click here!

Photo source: New Jersey Autism Center of Excellence

Last week, Sabine Scott joined the READi Lab to work on the Pathways study and the new Sprout study! Born and raised in Southern California, she graduated from Pomona College with a Bachelor of Arts in Psychology in May 2019. Previously, she conducted research involving language acquisition and problem-behavior reduction, worked as a behavioral interventionist, and worked at a day camp for children and young adults with disabilities. Sabine hopes to continue working with children with ASD and their families, and to eventually pursue a PhD in clinical psychology. We are very excited to welcome her to our team!

 

Children on the autism spectrum each have their own personality and ability to react in social situations, which is why Autism Speaks has collaborated with the University of Washington READi Lab and Microsoft office to create Personalized Teaching Story templates. These templates can be customized with pictures and personalized language to teach children on the spectrum what to expect in various social situations. Here are the personalized story templates currently available:

• When a Bad Person Hurts Other People
• Going to a Restaurant
• Going to the Store
• Handling Bullying
• Play Date
• Potty Training
• Taking Turns

If you would like to know more about the Personalized Teaching Story templates or want learn how to develop your own template, please click here!

Ethan Shallcross, a teenager software developer who has a form of ASD, developed Aumi to help people manage their anxiety, mental health, and physical health. There are four main functions: mood tracking for self-management, energy accounting to avoid burnout, a planner, and profiles that enable users who struggle with communication to share their story with others. The app was developed for people with ASD, and its high customizability makes it adaptable to the user’s needs so it is not overwhelming to use. Shallcross is continually adding new features to better help people in the ASD community. If you want to learn more about the app, click here!

We are very excited to announce the receipt of a new 4-year Clinical Trial Award from the U.S. Department of Defense (DoD). This new grant, currently called the Sprout Study, will enable us to expand our work with the Part C Early Intervention System to promote the use of evidence-based screening and intervention for children under 3 years old in Western Washington. The Principal Investigator is Dr. Wendy Stone, and the Co-Investigators are Drs. Lisa Ibanez, Jill Locke, and Kevin King. Ms. Kisna Prado will serve as the Research Coordinator for this study. This new grant will complement our other ongoing grant awards from NIMH and HRSA, which share the goals of expediting access to early ASD screening and specialized intervention when ASD is suspected. And in case you’re wondering, the DoD Autism Research Program is one of their Congressionally Directed Medical Research Programs.

School psychologist Dr. Peter Faustino shares six tips to help families with children with autism spectrum disorder (ASD) talk about tragedy. These tips not only offer families power and strength to encourage their children to cope with frightening and tragic events, but also allow families to establish a sense of security for their children. Examples of some tips are:

• Starting the conversation by asking your child what he or she already knows about the incident
• Using the communication style and level that works best for your child
• Recognizing that individual children process information differently and over a different time course
• Connecting with others to develop support networks
• Watching for behavioral changes in your child
• Focusing on positive aspects of the incident, to the extent possible

To learn more about the six tips, click here!

Doug Hebert, an art teacher and comic book artist, is inspiring and empowering teens with autism through his new comic book superhero, “Focus!” Hebert highlights autism as the hero’s super power, rather than a shortcoming or disability. Also, in order to inspire and mentor young artists with autism to fulfill their creative potential, Hebert encourages them to create the covers and panels of his comic books. To learn more about the comic book “Focus,” click here!

 

This week the READi Lab said a bittersweet good-bye to Katie Coddington, who will be pursuing her Masters in Occupational Therapy here at UW in the fall! Katie has been an integral part of the READi Lab team over the past three years. During her time in the lab, she played an essential role in coordinating the ImPACT study, training staff to perform play-based assessments with families in our studies, and mentoring undergraduate research assistants. We will miss her kindness and passion for working with children with developmental delays, but wish her all the best in this next step in her career. Thank you for everything, Katie!

Last week, Wendy represented the READi Lab and the Pathways project at the Autism Cares Meeting in Washington D.C. She was in good company, with colleagues from the UW LEND program, Seattle Children’s Autism Center, and the WA Department of Health. And yes, it was during their 90-degree heat wave. Wendy presented a summary of the results of the focus groups conducted with EI providers regarding their work with families when ASD is suspected.

As families prepare for their summer vacations, a growing number of special attractions, theme parks, and hotels are preparing and receiving training to provide sensory-friendly and inclusive services to all types of families, including those with children with autism. Among the destinations doing so are Sea World Orlando, Aquatica Orlando, and Discovery Cove. In an effort to provide a less sensory stimulating play experience for children with autism, each park has created a quiet room with neutral décor, minimal noise, lighting on dimmer switches and interactive toys where families can take a time out. Sensory guides have been created for each park that rate the attractions on a scale from one to ten based on the five primary senses – touch, taste, sound, smell and sight. They are available online and corresponding signs have been posted in each park!

 

The website Autism Travel provides a list of the certified destinations, including resorts and malls that accommodate families with children with autism. To learn more about the inclusive opportunities, click here!

The British children’s television series “Pablo” centers on the adventures of the title-character, who is a five-year-old boy with autism, and his imaginary animal friends, the Book Animals, who go on adventures in Pablo’s Art World. A typical episode will begin in the real world where Pablo is performing a daily activity and when he encounters a problem or experience he does not understand, the show transitions into his animated art world.  Through each episode’s story, the audience gets a glimpse into the real-life experiences of children with autism. The show is also unique in that it is entirely voiced and co-written by people with autism. If you would like to check it out, the show is available for streaming on Netflix here!

Yesterday, Wendy Stone joined UW colleagues Ann Vander Stoep and Elizabeth McCauley in Los Angeles to present a symposium at the 2019 International Society for Research in Child and Adolescent Psychopathology (IRSCAP) Convention. The symposium was entitled “Solving the Problem of Poor Access to Empirically-Supported Mental Health Interventions Locally and Globally.”

Dr. Vander Stoep (Departments of Psychiatry and Epidemiology) described her program to promote healthy parenting by increasing knowledge about the effects of harsh parenting on the developing brain. She has partnered with community-based organizations both in Malawi and the Ethiopian community in Seattle to increase positive parenting skills.

Dr. McCauley (Department of Psychiatry and Behavioral Sciences) described the BRISC program (Brief Intervention for School Clinicians), a 4-session, flexible school-based intervention for high school students. Preliminary results revealed positive improvements for both mental health counselors and students, and she is now conducting a randomized controlled trial in public schools in 3 states comprising 52 high schools.

Dr. Stone (Department of Psychology) presented on the Screen-Refer-Treat (SRT) Study, which involves working with community-based providers in primary care and early intervention to increase the use of evidence-based screening and intervention for toddlers with, or suspected of having, autism. You can read more about the SRT study on our website!

We are so proud of Lizzy Karp and Sarah Edmunds, who participated in the Psychology Department “hooding ceremony” on Saturday, June 15. Lizzy spent the past year on internship in the TEACCH Autism Program at the University of North Carolina Chapel Hill, and Sarah has been on internship at Duke University.  Upon completion of their internships, you may address them as Dr. Karp and Dr. Edmunds!  Both are off to outstanding postdoctoral fellowships next year. Though we will miss them dearly, we cannot wait to celebrate their future achievements.

Today the READi lab is saying a very bittersweet “Goodbye!” to Elyanah, who has been a vital member of our team for almost 3 years. She has been integral in coordinating the Screen-Refer-Treat study and mentoring undergraduate research assistants. We will miss her keen organizational skills and her passion for community-oriented advocacy tremendously. After being immersed in research related to early intervention, she is very excited to start working as a Family Resources Coordinator to assist families in accessing resources more directly. We cannot wait to hear about her new achievements, and we wish her all the best. Thank you for everything, Elyanah!

Traditional theater experiences can be difficult for individuals with autism spectrum disorder or other sensory and cognitive needs. A number of organizations in the Seattle area, including Village Theatre, the Paramount Theatre, Taproot Theatre, Seattle Symphony, and Seattle Children’s Theatre, have begun offering sensory-friendly performances to make theater more accessible. These performances alter the sound and lighting design and include warnings before any surprising or scary events so as not to overwhelm neurodiverse audiences. Additionally, some theaters offer social stories about attending a performance. The Universal Participation Initiative, one of the entities helping push for greater accessibility and offering training to arts organizations, hopes that progress on audience development can lead to long-term accessibility changes to theater settings. To read more about sensory-friendly shows in Seattle, click here.

Yesterday morning Catherine Dick presented the research project she completed through her participation in the UW LEND program (Leadership Education in Neurodevelopmental Disabilities). Her LEND project compared parent perceptions of the family-centeredness of their Primary Care Providers and Early Intervention providers.  This quarter Catherine will be finishing up her year as a LEND trainee, as well her third year in the Child Clinical Psychology Program. Time flies, doesn’t it?